And of course that made me think about the people close to me, many of who are distinctly inconvenienced by my state, as well as, and I am guessing here, disappointed that things are not as easy as they used to be. I am not who I used to be. And perhaps I am on a roller coaster that moves only in one direction….downwards.
Today, I saw the young man, Aki, who has been cutting my hair for the last ten or fifteen years, during which time he has married and become the father of two darling little girls, now six months and three years. I made a sweater and hat for the first little girl, nothing yet for the second, but she may have used them as well. Aki suggested quietly that perhaps the next time I need a haircut he would come to me, since the ice and snow would not be possible for me to traverse. Even today, it was difficult to get up the cement steps to the hallway and then into an elevator. And a very kind young woman offered to see me downstairs and to get a taxi for me, since I was going on to see dear Dr. Charney, the neurologist who was so brilliant about Mariam Chamberlain’s emergency treatment that she lived her last six years in relative physical comfort.
Dr. Charney has also been kind, considerate, and clever with regard to what ails me, though he also has not offered what isn’t possible. For me, his comforting assurance that I was not a candidate for Alzheimer’s has been most important. I’ve often said that I could live with disability as long as I could use my fingers at a keyboard. And that is now where I am. But I can’t walk normally and no one can tell me why not. Dr. Charney once again offered rehab to me. I tell him my feet are sometime burning hot and he murmurs neuropathy and offers me a tiny dose of something that may stop the heat. Take these and call me on Friday, he says.
Where am I going?--you may be asking. I began with the kindness of strangers, moved on to people whom I have known for some years, but the person in my head when I began to write was AnnJ, my daughter-in-law, who spent her days researching walkers to find one that she knew would please me. See the photo of the walker both opened and closed. It goes to the opera and the theatre quite easily, as well as to doctors, and even to a grocery store for a couple of things. And I haven’t been thinking of Thanksgiving, though there must have been some thought of the holiday in my spirit tonight as I sit here and enjoy the movement of my fingers on the keyboard.
Enjoy tomorrow….though this message may reach you days later. We can’t go on mourning. We need action, vigilance, intelligence, and planning for the future….Would that I could heed my own words!